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EraseIBC - Michigan:
P.O. Box 16
Milford, Michigan 48381
Common IBC Symptoms:
Things You need to know:
Mammograms usually don't pick up IBC because so often there is no lump.
Why - Reason #1
Doctors misdiagnose Inflammatory Breast Cancer as a breast infection or mastitis.
Why - Reason #2
We need to push this message across the country.
Our group of dedicated advocates are, and a brief message about each one of us.
These are TIPS that doctors and patients have given to people dealing with first symptoms of Inflammatory Breast Cancer, plus TIPS from patients who have gone through chemotherapy.
The information contained on the 'eraseibc.com' web site is presented for the purpose of educating people on Inflammatory Breast Cancer. Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly.
Education is the MOST powerful tool in the fight against misdiagnosis and improper treatment of Inflammatory Breast Cancer.
Our Foundation's mission is to educate the public and the medical community when needed, that this form of breast cancer is different and is rarely picked up by mammograms.
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They hope to return in 2015.
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"Life isn't about waiting for the storm to pass....It's about learning to dance in the rain"
INFLAMMATORY BREAST CANCER
MEDICAL PROGRESS IN THIS FIELD OF STUDY
Inflammatory Breast Cancer (IBC) is THE MOST aggressive type of breast cancer in which the cancer cells block the lymph vessels in the skin of the breast. This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”, sometimes overnight.
The below link will take you to the latest CME (Continuing Medical Education) for Doctors and nurses. http://www.medscape.org/viewarticle/736883
Click on the IBC ribbon to see photos of clinical signs of Inflammatory Breast Cancer.to see photos of clinical signs of Inflammatory Breast Cancer.
The pictures are graphic, but education is powerful.
* Remember that no one woman will have all these symptoms, and some may only have a few. Everyone is different.
Signs of IBC
Because inflammatory breast cancer doesn't normally occur as a breast lump and has a peculiar growth pattern, its symptoms are not typical signs of cancer, and may appear to be something else.
IBC symptoms may include one or some of the below:
If one or more of these symptoms continue for more than a week, talk to a physician immediately, and find an expert with experience in treating this particular type of breast cancer. Many women have to demand that their physicians "rule out" IBC, and (therefore) become their own best advocate, as more education is needed in the medical community regarding this form of breast cancer.
MD Anderson IBC Clinic states:
Standard diagnostic tests for breast cancer, such as mammograms, MRI and biopsies generally cannot accurately diagnose IBC. The following tests are used to make a diagnosis:
* Surgical biopsy – larger samples of the breast skin and underlying tissue can be collected in a surgical or skin biopsy, with better chances for identifying the cancer cells.
*PET Scan – In the near future, this could be one of the most important diagnostic/staging tests for IBC, though it is still under study. PET scans enable oncologists to see more disease.
The National Cancer Institute states:
IBC is classified as either stage IIIB or stage IV breast cancer. Stage IIIB breast cancers are locally advanced. Stage IV breast cancer is cancer that has spread to other organs(metastasized). IBC tends to grow rapidly, and the physical appearance of the breast of patients with IBC is different from that of patients with other stage III breast cancers. IBC is an especially aggressive,locally advanced breast cancer.
Inflammatory breast cancer is typically treated with chemotherapy before surgery.
Treatment consisting of chemotherapy, targeted therapy, surgery, radiation therapy, and hormonal therapy is used to treat IBC. Patients may also receive supportive care to help manage the side effects of the cancer and its treatment. Chemotherapy (anticancer drugs) is generally the first treatment for patients with IBC, and is called neoadjuvant therapy. Chemotherapy is systemic treatment, which means that it affects cells throughout the body. The purpose of chemotherapy is to control or kill cancer cells, including those that may have spread to other parts of the body.
After chemotherapy, patients with IBC may undergo surgery and radiation therapy to the chest wall. Both radiation and surgery are local treatments that affect only cells in the tumor and the immediately surrounding area. The purpose of surgery is to remove the tumor from the body, while the purpose of radiation therapy is to destroy remaining cancer cells. Surgery to remove the breast (or as much of the breast tissue as possible) is called a mastectomy. Lymph node dissection (removal of the lymph nodes in the underarm area for examination under a microscope) is also done during this surgery.
For more information on treatment, you can go to the websites below , and enter the search term, inflammatory breast cancer.
National Cancer Trials for IBC: www.cancer.gov/clinicaltrials
(the above site is for basic trials for breast cancer. By entering
Inflammatory Breast Cancer into the search, it brings you to this link:
When searching for clinical trials within the National Cancer Institute, you will notice this sentence:
"For more details about this trial, refer to the Health Professional version of the trial summary."
It is a link within each trial. By clicking on the link, in most cases,it will take you to a different page that states Inflammatory Breast Cancer is included.